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uk national support

Inclusion in this page does not imply a recommendation

SYNOPSIS
UK national support organisations and links for people with Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, Post Viral Syndrome and Fibromyalgia (in alphabetical order)
 

This page is under continual review. If you find an error, please CONTACT us.

NATIONAL SUPPORT ORGANISATIONS
Action for ME
E-mail: admin@afme.org.uk URL: http://www.afme.org.uk/
One of the two principal support organisations in the UK.
Tel: 0117-927-9551 Fax: 0117-927-9552.
They have a network of over 150 support groups in the UK.

Action for Youth with ME
E-mail: ayme@powernet.com URL: www.ayme.org.uk
Support for young sufferers.

Aerotoxic Association
E-mail
info@aerotoxic.org URL: http://www.aerotoxic.org/
Support for sufferers from Aerotoxic Syndrome

Alexander Technique

E-mail: hilary@stat.org.uk URL: www.stat.org.uk
Some ME sufferers have found this technique helpful, including Esther Rantzen's daughter.

Axford's Abode
In-depth issues and information on ME/CFS

Doctor David Mason Brown's Website
E-mail: jan@cfs-me.com URL: http://www.cfs-me.co.uk/
Includes insights which are a direct result of having recovered from M.E. himself.  Also includes up to date information about M.E. workshops throughout the U.K.

Disability Information Directory
E-mail: sue@dinfo.co.uk URL: http://www.dinfo.co.uk/
A comprehensive index of thousands of UK product suppliers and service providers catering specifically for the less able individual’s needs.

Disability Information Website
E-mail: editor@uhad2bthere.co.uk  URL: www.uhad2bthere.co.uk

Disability Now UK

E-mail: editor@disabilitynow.org.uk URL: http://www.disabilitynow.org.uk
A UK disability site, giving a whole range of useful information: articles, links, adverts and an archive.

EQUIP
E-mail: sarah.greening@wmdeanery.org  URL: www.equip.nhs.uk Tel: 0121-414-7754
An NHS website that signposts to quality-checked health information and support groups.

Fibromyalgia Association
Supporting UK Fibromyalgia sufferers
E-mail: fms@blueyonder.co.uk URL: www.fibromyalgia-associationuk.org
Tel: 0870-220-1232

Fibromyalgia Support
Offering free, unbiased sources of information for Fibromyalgia sufferers and their carers as well as a national directory of support groups.
E-mail: support@fibromyalgia-support.net URL: www.fibromyalgia-support.net

Foggy Friends
Foggy Friends offer friendship, support and fun through their friendly website, forum and chat room.
URL: http://foggyfriends.org/index.html

GUiDE
Gloucestershire based national information service for health, welfare, social care and disability matters
E-mail: enquiries@guide-information.org.uk URL: www.guide-information.org.uk
Tel: 01452-331131

Help With ME
Helping to make living with ME easier
E-mail: info@helpwithme.com URL: www.helpwithme.com

Home shopping
Home shopping is a vast and changing field. For an up-to-date information sheet, e-mail Jane on: E-mail: jane.harries@virgin.net

Hypnotherapy Directory
A useful resource for those looking for support or general advice about hypnotherapy.
E-mail:
 emily@hypnotherapy-directory.org.uk URL:  http://www.hypnotherapy-directory.org.uk

Irritable Bowel Syndrome

Do you have Irritable Bowel Syndrome as well as ME? Find an IBS treatment that works for you.
E-mail: Help@HelpForIBS.com URL: http://www.helpforIBS.com
OR
E-mail: sophie@ibstales.com URL: http://www.ibstales.com

Jan Brumfitt's Page
Helping you to help yourself to heal your ME
E-mail: jan.brumfitt@virgin.net URL: http://www.janbrumfitt.co.uk

Listening Books
E-mail: sfletcher@listening-books.org.uks URL: http://www.listening-books.org.uk/
Tel
: 020-7407-9417
Listening Books provides a postal audio book library service to anyone who suffers from an illness or disability which makes it impossible or difficult to hold a book, turn its pages, or read in the normal way.

ME Relief
Amino Acid Supplements designed to work in harmony with the body's systems. Effective treatment for ME and CFS.  Evaluation pack available.
E-mail: info@cfsandme.co.uk     URL: www.cfsandme.co.uk  Tel: 01945-450807

ME Support

This excellent website provides a wealth of information, facilities and useful contacts for people with ME.  Highly recommended.
URL: www.mesupport.co.uk

The MEACH Trust
ME Accommodation and Care Homes.  A Charity which aims to raise enough money to provide specialised residential accommodation, with specially trained care staff, for patients suffering from sever ME.
E-mail:  Tel: 01903-891383

ME Association
The other principal UK support organisation
E-mail: enquiries@meassociation.org.uk URL: www.meassociation.org.uk/index.htm

ME Free for All
A single meeting place for people with M.E., their carers, doctors and researchers to gather. Anyone concerned with M.E. may have access to the same information and exchange views here.
E-mail: drjohngreensmith@mefreeforall.org URLwww.mefreeforall.org

NutriPeople

Quickly and easily find your nearest UK nutritional practitioner.  Also news, events and information relating to health and nutrition
E-mail: denise@nutripeople.co.uk URLwww.nutripeople.co.uk

Research in the UK
Online Survey into the relationship between ME/CFS/FM sufferers and their physician.
E-Mail: cearahayden@googlemail
URL
 www.surveymonkey.com/s/CFSonlinesurvey

Satori-5
Information resource for ME/CFS sufferers, especially if also suffering from Multiple Chemical Sensitivity [MCS] and/or Hazardous Radiations Sickness [HRS]. Created by a sufferer from all three.
E-mail: webmaster@satori-5.co.uk URL: http://www.satori-5.co.uk

Severe ME Group
E-mail: enquiry@25megroup.org URL: http://www.25megroup.org/

Support ME
An excellent online resource for sufferers from ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome), CFIDS (Chronic Fatigue Immune Dysfunction Syndrome), PVFS (Post Viral Fatigue Syndrome) and Fibromyalgia (FM)
E-mail: info@supportme.co.uk URL: www.supportme.co.uk

Therapy Support
If you need medical support near you, search this network to be connected with a professional therapist.
E-Mailross@therapy-directory.org.uk URLwww.therapy-directory.org.uk

WAMES - Welsh Association of ME & CFS Support

An umbrella body aiming to give a united voice to ME and CFS sufferers in Wales
E-mail: enquiries@wames.org.uk URL: http://www.wames.org.uk

What Doctors Don't Tell You
The complete service and web destination if you want to know more about a health problem
E-mail: cs@wddty.co.uk URL: www.wddty.com

Yoga for Health Foundation
General and remedial residential Yoga centre in Bedfordshire with clubs throughout the UK and members around the world. They hold courses for ME/CFS sufferers.
E-mail: admin@yogaforhealthfoundation.co.uk
URL: http://www.yogaforhealthfoundation.co.uk
Tel: 01767-627271

Young Action Online
Support for children with ME/Chronic Fatigue Syndrome
E-mail: jane@youngactiononline.com URL: www.youngactiononline.com/index.htm
 



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